Today AARP joins more than 700 patient advocacy groups, professional societies, medical organizations, and thousands of patients worldwide in supporting the global campaign for clinical trial registration and reporting led by AllTrials. 

“AARP recognizes the importance of clinical trial transparency and supports the AllTrials campaign, which calls for the registration of all clinical trials and the publication of their full methods and results. Greater clinical trial transparency will help accelerate scientific progress and also improve healthcare delivery,” AARP said in a statement to AllTrials USA.

AARP joins AllTrials at a time when the urgent need for clinical trial transparency has become a national discussion in the U.S. With new rulings from the FDA and NIH reiterating the need for registration and reporting to be mandatory on clinicaltrials.gov, the potential for real improvement in transparency has never been greater.

“Around half of all clinical trial results go unreported, preventing doctors and patients from having access to all the information they need in order to make the best choices for their health. By joining the AllTrials movement for clinical trial transparency, AARP continues a nearly six decades-long fight for improved healthcare and quality of life for millions of Americans,” says April Clyburne-Sherin, AllTrials USA Campaign Manager.

Other American patient advocacy groups that have endorsed AllTrials, include the American Medical Association (AMA), Gay Men’s Health Crisis (GMHC), Project Inform, the National Comprehensive Cancer Network (NCCN), and the Treatment Action Group (TAG).

AllTrials USA aims to unite patient advocacy groups, professional societies, researchers, academic centers, publishers, investor groups, and pharmaceutical companies to curate and promote a national conversation about the value of clinical trial transparency and the ethics of conducting trials. Hear the stories of patients who have joined the AllTrials initiative through the In Their Words story series.

The U.S. initiative launched in July 2015 and is a project of Sense About Science USA, a nonprofit (501c3) based in Brooklyn, New York.

For more information on the AllTrials initiative, please visit/watch:
http://www.senseaboutscienceusa.org/alltrials/
http://www.senseaboutscienceusa.org/sign-the-petition/
The Story of AllTrials video
https://twitter.com/AllTrialsUSA

For interviews, contact:
April Clyburne-Sherin, AllTrials USA Campaign Manager: april@senseaboutscienceusa.org