Patient advocacy in the age of social media

By Elizabeth Schiavoni, a freelance medical and science writer.  Registered Nurse Jenneh Bockari and trained researcher Natalie Archer met on Instagram. After years of living with endometriosis, a painful and commonly misunderstood chronic condition, they turned to...

When reporting clinical trial results changed a life

By Stephanie Wykstra, a freelance writer and research consultant for AllTrials USA. In June 2016, Nicole Gularte was ready to die. The 33-year-old tax accountant had relapsed from Leukemia several times since her diagnosis years earlier. She had lost her hair, could...

On a mission to solve the organ donor shortage

Interview by Stephanie Wykstra, a freelance writer and research consultant for AllTrials USA. Josh Morrison was working as a corporate lawyer in Boston in 2011, when he donated his kidney to a stranger. Three years later, he and fellow donor, Thomas Kelly, co-founded...

Undiagnosed, isolated, and searching for answers

By Stephanie Wykstra, a freelance writer and research consultant for AllTrials USA. Gina Szajnuk and Justin Zanik discovered a bump on their oldest child Ava’s head in 2009, when she was three years old. A neurologist determined that the bump was a...

From misdiagnosis to helping thousands

By Stephanie Wykstra, a freelance writer and research consultant for AllTrials USA. On any given day, Lauren Stiles wakes up to find emails from patients in Saudi Arabia, doctors in New Zealand, or monks in India, all asking for advice. The organization that Stiles...